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Blogging From the Personal Side of Parenting

The internet has a wealth of information about a vast variety of special needs. It is fairly easy to look up medical information or news articles regarding a special need. Sometimes, it can be comforting to read a blog written by a parent about the personal side of parenting a child who has a special need. Here are a few interesting ones to explore. Parents can get online and quickly look up symptoms, recommended diets, help with IEPs, and news about health insurance coverage for their child’s special needs. What about if all you want is some conformation that your … Continue reading →

Special Needs Blog Week in Review – Week of April 29 – May 5, 2012

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Every week, the Special Needs Blog Week in Review gives you a brief review of each and every blog that appeared here in the past seven days. This is a quick and easy way to catch up on whatever you might have wanted to read, but didn’t have the time to when the blog first went up. What did you miss this week? The Special Needs Podcast Roundup went up on April 30, 2012. This time, I’d like to point out an episode of The Coffee Klatch that was called “Dr. Temple Grandin – Different Not Less”. This is Dr. … Continue reading →

Parking Permit Problem Reduces Access to Home Care

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A mother in Philadelphia wants a parking permit. Her infant daughter has SMA, and the nursing care providers who come to her home keep receiving parking tickets. The Philadelphia Parking Authority won’t issue a specialized permit that would prevent this problem. Anat Caspi lives in Philadelphia with her husband and infant daughter. Her daughter, Aviv, has spinal muscular atrophy, (otherwise known as SMA). This is an extremely rare genetic disorder that does not have a cure. A few months ago, another baby was in the news who also had SMA. Avery Lynn Canahuati passed away in May of 2012. She … Continue reading →